Monthly Archives: October 2013
To update you on my previous post, we don’t have H’s results yet. We get them Wednesday. His testing was over the course of two sessions: one for the actual neuropsych “tests”, and one for self-report “questionnaires”. So his testing has spanned nearly a month, mostly because we like to space out our trips to Boston, but for someone with a different schedule it could happen much more quickly.
Tomorrow is my (first?) testing day. I’ve been calm about it until now, but tonight I’m having a lot of emotions about it. I’m 28 now. I’ve been seeking a diagnosis since I was 16 or 17, and I’ve suspected I was “sort of autistic” since I was a kid. I was looking through some childhood photos today and thinking how in so many of the pictures I’m on a swing, a rocking chair, or a rocking horse. I decided to bring the photo album in as a sort of talking point for the interview.
I could write a lot more, but I better get some sleep since my test is at 9am. I will report back later with how it went.
My roommate, H, just went for neuropsych testing today. (Well, technically yesterday – I’m writing this in the wee morning hours). He finished all the actual tests today, but he goes back in two weeks to fill out questionnaires, and in another two weeks to get results. (The spacing of the appointments isn’t necessarily typical; we scheduled it around what days we go into the city.) H, D, and I are all pursuing a diagnosis, and I have my appointment for neuropsych testing in a few weeks. H is the first of the three of us to get tested, although D’s younger brother was tested and diagnosed PDD-NOS over the summer.
I can’t speak too much about the tests, partly because I wasn’t the one taking them, and partly because I’m trying not to find out too much about them so I don’t “spoil” myself for my evaluation. By that I mean, it sounds like a lot of the tests involved trying to figure stuff out, and if I learn too much about the tests and how H did them, it might mess up my test results if I have the same tests. This is kind of stressful, and now I’m anxious to get my test out of the way so I can stop worrying about avoiding “spoilers.” It feels like how Breaking Bad ended and I still haven’t seen past like season 4, so now every time someone mentions the show I have to cover my ears and go “LA LA LA I CAN’T HEAR YOU”.
What I can say is that the psychiatrist, and H, were happy to have D and me come back and contribute to the interview portion. D was kind of overwhelmed and didn’t say much, but I prompted H about a few things he forgot to mention, like how he’s really sensitive to different fabric textures, and how his dad likes to infodump about cars to anyone who so much as says the word “car”. So yeah, if you have a good friend who’s familiar with your autistic traits, it might be a good idea to bring them along, especially if you think you might blank out during the interview.
Another (probably?) unrelated thing that’s been on my mind is how, even though I suck at interpreting human body language, I’m really oddly good at interpreting feline body language. If my cat, Jake, lies in a particular position, I know he wants someone to pet him. If he goes over to D who is on the couch and makes a certain face, I know he wants D to pat the couch and invite him up. If D starts petting him and he looks annoyed, I know he wants D to move his arm out of the way so he can climb on his lap and crush all of his internal organs. (Jake, at last weigh-in, was 22 pounds.) So I’m constantly talking for the cats, like “Jake wants you to pet him” or “Dot wants to sniff your hand.” This is one of those things that I know is probably weird, even though it comes pretty naturally to me. And really, I’m not sure about the cause of this – it’s very possibly an autistic thing, but it could also be because I grew up as an only child who always had multiple cats. Or maybe a mix of both. I suspect it might be common in autistic people though. I know a lot of us tend to avoid people at parties and go hang out with the cat, and I bet for a lot of us, it’s because we find it easier to understand the cat.